Welcome to my healing journey.
On September 28, 2012, at 11:13 a.m., I gave birth to my first child. A beautiful and precious little boy named Henry. He was only 21 weeks old in-utero, and just slightly bigger than my hand. We were forced to say goodbye because he was growing with a fatal and incurable bone disorder called osteogenesis imperfecta type 2a.
Not even my womb could protect him from harm. At an ultrasound with a bone growth specialist, when they discovered his terrible disease, the doctors found that he had already suffered multiple fractures to his brittle bones, and was not going to survive. After Henry’s birth, our doctor’s only comment was that he had a particularly severe form of an already devastating disease.
This site will be dedicated to the memories we have of Henry, my grieving process, and the sincere hope to reach out to other parents who have lost a child. I hope to post resources and helpful information as I discover them.